Sunday, October 24, 2010

All You Need


All you need...

Is love...
And hope...

Love for a little one...
Love for a bigger one...

Love for a sister...
Love for a brother...
For a son...
And a daugther...

Love for zebras...
Zebras like Ella...

All you need...
Is love...
And hope...

All you need...

Is people...
Who for some reason...
Believe in a cause...
And gather together...

Perhaps because they too...
Have seen loved ones...
Fight their way...

Against and through a system...
That is not built for them...
That has no room for them...
That plainly abandons them...

All you need...

Is a medical practionner...
Willing to listen...
To learn from you...
And fight with you...

All you need...

Is to find someone...
Only one...
A zebra...

Who just like you...
Thinks they are...
Alone...

All alone...

And although their diagnosis...
Might be completely unrelated to yours...
The reality is...
Your challenges are the same...

All you need...

Is to live...
On sheer determination...
On a quest...
For a connection...

A connection...
That you hope will come...
Before life decides it's too late...

All you need...

Is for your efforts to pay off...
For you to find that zebra...

All you need...

And all you can say...
Is thank you...
And bless you...

And together...
All you need...
Is hope...

Hope to find others...
Other zebras...
Different from you...
Or exactly like you...

Who are possibly one in a million...
Or may even be unique...

All you need...

Is to keep up hope...
that you are one of the few...
The ones we call: "lucky"...

Who find another...
Sharing the same rare disorder...
That afflicts them...

Although you could be thousands of miles apart...
Together you hope again..
To get a name...
Simply a name...
For the burden you carry...

And then you hope...
To be "lucky" again...
And find solutions...
For better management of symptoms...

But really...
All you need...

Is to be "lucky"...
"Lucky" enough...
To finally come across a cure...

A cure for a friend...
A cure for a mother...
A cure for your baby...

Now if you are like me...
Faced with a verdict that had no name...
No cure...
And was disabling your little girl...
One breath at a time...
Until it finally took her away...

You fight...
For a diagnosis...

You search...
For similar cases...

You research...
the silent killer...

You reach out...
To the world...

You vow...
To protect others...

By teaching...
The medical community...
About this disease...
That took Ella's life...

And then one day...
You cry...
As your first connection...
Brings on a flood of emotions...
And you realize you are not alone...

All you need...

Is to embrace...
The results of your quest...
And say thank you...
And bless you...

All you need...

Is to keep pushing forward....

All you need...

Is to love...
And to hope...

And continue...
To positively impact...
Those who like you are zebras...

Zebras like Ella...

ELLA - Everyone Loves Little Angels